ABLE accounts
With disabilities, the income and asset restrictions for SSI and Medicaid, it's usually impossible to save up for anything! I'm sure I'll discuss how outdated the caps are in a future post, but for now, I want to discuss something that many people - including those who qualify - don't know about: ABLE accounts.
Chronic SOS - September 1, 2023
Labor Day and the end of summer vacations is upon us. In the spirit of the season, the Chronic SOS Posts- as well as some other posts - will be work and school related. There are so many things to discuss and I look forward to writing about them.
Chronic SOS - August 29, 2023
It's another friend's birthday!
For this person's birthday, I've tried to find some unhinged goofy memes in order to honor the goofball they are.
Ask Aunt Lori - Disability Benefits
Note: this is about disability benefits in the United States
Dear Aunt Lori,
How do you apply for disability benefits? What do I need to have?
Applicant
Cooling Blanket Review
I'm very hot natured and sensitive to heat, and sometimes the bed sheet feels too hot to cover up with; but I still want something to cover up with. I saw some cooling blankets advertised online with good reviews, so I decided to try one.
Chronic SOS - August 23, 2023
To distract myself from the heat, I'll be sharing pictures and videos of autumn and winter landscapes.
My Skincare Collection
Over the years, I've tried many products and have found a few that I always keep around and use often as well as some that I use when I'm having a particularly rough time.
Chronic SOS - August 18, 2023
In order to pass the time and distract myself, I will often play games on the Nintendo Swtch.
So today, I'm going to share screenshots of the game that I've been playing a lot recently: House Flipper.
He got worse
TW: ableism, misogyny, mistreatment by healthcare providers
I reported Dr. Waters and provided a lot of evidence of my experience with him being… less than ideal. When you report a doctor, they have to respond with a letter and you receive a copy along with information on any actions they took/didn't take.
I received the letter.
Ask Aunt Lori - Grooming
TW abuse, domestic violence, sexual abuse, child abuse, grooming
Amid the Colleen Ballinger situation, we need to talk about what grooming is, how to spot it, what to do if you see it, and the tactics that groomers use to deflect allegations and downplay their actions. Knowing these things can help keep yourself and others safe.
Chronic SOS - August 8, 2023
I hate that I wasn't able to post during Disability Pride Month. I posted on Tumblr frequently and celebrated there - if you're a spoonie, I highly recommend joining Tumblr! There's a large online community of fellow spoonies there!
Let's look at some funny medical and spoonie tiktoks today:
Beginner's Guide to Supporting Chronically Ill Loved Ones
While there's often no clear answers and it varies depending on the individual, the condition, and so much more, but there are many things that are universally good to support your loved ones.
Chronic SOS - July 15, 2023
Happy birthday to a kickass advocate!
Chronic SOS - July 14, 2023
July is also a seemingly popular birth month and three pretty cool people have consecutive birthdays, starting with today.
Ask Aunt Lori - Tampons
Dear Aunt Lori,
I got my period while away at summer camp. We're going swimming tomorrow and I don't want to miss it, but I've never put a tampon in before..
Technical Issues…. Again
I wrote a memoir
I open with the first instance of my determination to live, no matter the odds; it's definitely foreshadowing. But the focus of the memoir is from January 26, 2016 to July 7, 2017.
Ask Aunt Lori - Sunscreen
Dear Aunt Lori,
Does everyone need to wear sunscreen?
Tick Diseases
Aside from being extremely annoying and covering you in the most itchy bites I've experienced, they carry a lot of diseases! These diseases are nasty; many cause lasting damage and are just sheer misery!
Chronic SOS - July 4, 2023
In honor of the holiday, and keeping in mind my previous post about fireworks, I'll be sharing videos of fireworks alternatives.